Finding a New Lens for Life

The past several weeks have felt incredible amidst the external chaos of the various challenges we face such as finding new contracts and piecing together what we have now to stay afloat as Megan and I have been moving together in an amazingly fluid fashion.

While it has been clear for some time that both of us have been making headway in terms of out own abilities to communicate with one another while dealing with our own internal processing, it seems that a month or so ago, I discovered a foundational component to one of the beliefs that kept me out of a state of reaction. This has truly been amazing for it’s felt like I’ve undergone a complete face-lift and I would think Megan would agree that I’m much more tolerable to live with.  

After we moved to North Carolina, neither of us wanted to acknowledge where we were financially. Moreover, I had no idea, nor did I want one, of how much debt we were in. Megan knew this and because she didn’t want to ask me to slow down in any way, she was hesitant to show me what was really going on. To compound this perspective, in the moments where she did try to provide me with a clear picture, I would automatically erupt in anger and refuse to work on solutions.

Though it was a long journey, we finally found the courage, over time to face our self-made reality. Yet, it took me even longer to learn to approach this process with openness rather than reactivity. A major component of this shift was catalyzed by my own ability to experience and let go of the fear that I was feeling without allowing it to control my response or mutate into another emotion.

While I recognize that a month may not erase patterns from the past six years entirely, I’m very excited about what appears to be a fresh beginning, and it’s even more exciting to me to explore the openness and freedom that is beginning to take root for both of us.

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In the Wake of Katrina’s Path

 

An Unusual Detour.

Though we didn't experience flooding by Katrina where we were in AL, Barton & I have been in storms where it has flooded.

 

Barton and I are huddled in the bathroom, his power wheelchair blocking the door. In the background, tornado sirens scream. Over the radio- the announcement that the EMS station lost power and they can’t tell us why the sirens are going off. The phone rings. Thinking it’s my grandfather who is two miles away and living alone, I answer. My father, stepmother and brother burst into Happy Birthday. Do I hang up? The epitome of irony…

Everyone in the South has their own Katrina story, where they where, if they were rescued, if they assisted in the rescue effort, in church praying for those who lost loved ones and homes, those on the ground volunteering in rescue camps or sorting through and handing out donated items.

I was already off work since Barton had a doctor’s appointment in Birmingham, and we had planned a night out on the town for my birthday. Instead, we drove back to Tuscaloosa with green and gray clouds swirling overhead, the news of New Orleans already blasting over the airwaves.

That night, we huddled in our safe spot, (not how I was expecting to spend my birthday) and when we ventured to the bedroom, I slept with boots on, just in case I needed to haul us out of there. Katrina was still a Category One, and there was a tree over the bedroom. I was praying that it wouldn’t fall, not only for our sake, but so that we could sell the house as we planned! We were lucky and sustained only minor wind damage, but several houses in our neighborhood did have trees down.

Two weeks earlier, Barton found out that instead of moving to North Carolina that October, we would be moving on September 1st. Unprepared for the quick turn-around, I was scrambling to sort through items in my mother’s house, prepare the house for sale, and getting us squared away in North Carolina while wrestling the arrangements for resigning from my work (as we needed health insurance for as long as possible). We decided that Barton would move on September 1st, and I would stay behind for a week.

On August 31st, I was pulled into meetings about the rescue effort, when I knew the next day I would be resigning from my job. It was a difficult moment to tell the CEO that I could not participate in publicity for relief effort. Barton moved up to NC, and I was left to fend for myself. The days following would be harrowing- news of the gas lines lead to gas siphoning, gas price gouging- I would drive down the street to get a rationed two gallons at $4.75 a gallon, and the emptying out of grocery stores. Other than the grocery store and gas stations, the streets were empty, and you could feel tension in the community rising. While it was nothing like New Orleans, I learned a lot about what happens, when as a community, we are all in panic mode. I was lucky- I was kept from watching those horrifying images over the television by the overflowing list of things to do.

While we only lost power for two days, my grandfather didn’t get power back for over a week. Though he was stubborn and wanted no help, I would take a cooler with fresh food for the day, cleaned out his freezer and leave flashlights and candles on the counter when I left. I sorted and packed items for the move and worked hard to repair the house. I made a huge donation pile for hurricane relief. (Later I would realize that a box of our childhood toys had accidentally made it into that donation & am thankful they were put to use). And I still worked, over my eight hours a day, to prepare for my exodus of seven years working in corporate advertising.

The hardest part was moving. At a time where everyone was huddling together, working and volunteering, we were leaving to go to a place where we could better sustain our family. I didn’t see or say good-bye to many of my friends until we actually sold my mother’s house six months later.

But Katrina isn’t just about remembering what happened, it’s about how we live now. Are we prepared for another natural or unnatural disaster? Really? One film called On Higher Ground talks about emergency preparedness for those with disabilities and their direct support professionals. While we have made long strides, there is still much work to be done.

Katrina made us think about what would we have done, we went through scenario after scenario- what if Barton couldn’t get the medicine he needed, what if we had to leave without his wheelchair (either of them), what if we had to rescue the neighbors (what would our different roles & procedures be), what if we couldn’t get food, what if I couldn’t get to NC? Trust me, we talked about & had a plan for everything we could think of, and some of those conversations were difficult to talk through.

Even when we moved into the new house, we asked- how could I get Barton out of the house if there was a fire blocking the exits…While the “what ifs” can drive you crazy, it’s important to know how to take care of yourself & how to take care of others.

As we approach the 5th anniversary of Katrina, we are reminded that the people around us are precious, that anything can happen, and to take steps to prepare for an emergency beyond our control.

Check out some resources to create your own emergency plan:

http://www.dotcr.ost.dot.gov/asp/emergencyprep.asp

http://www.ready.gov/america/getakit/disabled.html

http://www.fema.gov/plan/prepare/specialplans.shtm

http://www.disabilitypreparedness.gov/

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Moving Each Other Forward with Patience and Inspiration

 

Enjoying each other at a family wedding.

Patient is not how I would normally describe Barton, or myself for that matter- our families are not well versed in patience either. What happens when you have two very stubborn and impatient people who are married to each other? Some pretty stupid arguments over nothing at all, might be a good description. But last week, I saw another side of Barton.

Last week was a particularly busy week as I was teaching a writing and storytelling class to youth with disabilities, in addition to working on writing projects. While there were a few times of getting overwhelmed with a flurry of calls and emails that had to be put aside for the moment, I juggled teaching, work, writing and home as best as I could.

Barton was absolutely wonderful and completely patient all week! From figuring out logistics with the schedule to compiling a list of what he needed all at once. Instead of overwhelming me with more tasks, we consolidated items, let some things be as they were and prioritized what needed to be done.

Many people are able to see how I help Barton, as much of it is physically. However, the ways in which Barton supports me are not so visible to other people outside of our relationship. But that does not mean the ways in which he supports me are not there.

I am honored that the relationship with Barton has grown to an encouraging and positive place, particularly over this last year. We have discovered our strengths and faults, and have found ways to blend our individual visions together, acknowledging each other in the process. There have been times where we haven’t been so supportive of each other, and I am so grateful that we have moved beyond that place to really coming together to support each other in our work and our visions.

To feel fully supported by my husband is incredible. Just today, when we felt the energy wane during the day, I encouraged Barton to work on a project that needed attention. It wasn’t about being degrading or meant to make him feel guilty that it wasn’t getting done, instead it was to acknowledge the importance of the project, spur him on, to encourage him to move forward in its vision and intention.

Immediately, we both felt motivated and inspired to continue on in our work.

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Unblocking Patience

 

Barton walking the dogs, on a normal ride.

Yesterday a friend of mine forwarded me a quote from the Dalai Lama that really resonated with me in the midst of the apparent chaos throughout the week. He said:

It is not just a person’s physical constitution, their intelligence, their education, or even their social conditioning that enables them to withstand hardship. Much more significant is their inner development. And while some may be able to survive through sheer willpower, the ones who suffer the least are those who have a high degree of patience and courage in the face of adversity. ~Dalai Lama

On the one hand, there were many moments this week when I felt myself become tense because my perspective of what I thought should be happening at that moment was not what life was allowing me to do, such as when I was lying on the floor laughing and playing with the dogs when I had hoped to be working on a project for work or when I was stuck on the side of the road trying to figure out the best way to get myself home when I was under pressure to get home before a phone meeting.

On the other hand, I certainly had my share of moments when I found myself embracing the situation and playing within the moment. Moreover. During the course of the week, I found myself learning to roll with the punches to a greater extent. On Tuesday, after Megan so kindly peeled me off of the floor, my agitation around the lost work time got the better of me, and it took Megan calling me out for me to actually recognize what was going on. By the time I found myself stuck in the street with the broken-down wheelchair, I was better able to remain patient in the moment and be present to the way in which the afternoon progressed.

When I read the email from my friend, I had to laugh out loud because it became clear that while I could see some slight improvement over the course of the week, I know I still have far to go in developing both patience and courage.
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Living in the Flow

 

We encourage each other to keep going.

 

Before we left for Chicago, I had been working on changing the paradigm of assigning value to every-day tasks and long-terms goals. I had gotten so frustrated because I could get all of the daily tasks- things due right now completed. Yet, I wasn’t able to touch those long-term projects and goals that would lead me to where I truly want to go. So the week we left for Chicago, I began the day with one task from my long-term goal pile, and found that I actually got more done during the day because I was excited, motivated and in the flow.

Yet when we returned, I struggled to rein my email in and get back on track to complete what was currently due. I also played with how I created my to-do list realized that I needed a tangible list because there are too many things for my memory banks to hold, but I needed a better way to organize those tasks and let go of using the task-list to measure my self-worth. Have you ever had a list and written something you’ve already done so you could immediately cross it off?

Barton had an even more difficult task to let go and live into the flow of his week- his wheelchair is literally in pieces. The parts-on-order list is long- back tires, joints that the tires are attached to, front tires, battery, footrest. To make matters worse- we had to wait to clear insurance and get a “prescription” from his physician, which created more delays. The pieces of metal that allow the tire to turn correctly were completely broken leading Barton to fight his wheelchair just to turn a corner in the house, dragging everything with him including the carpet.

Tuesday evening I came home to Barton lying on the floor, out of his wheelchair with our three dogs licking his face. His frustration was clear, as his wheelchair had gotten caught on the rug, and when he looked to see how to get uncaught, he lost balance and fell out of his chair. Now, he’s taken his motor wheelchair to martial arts training and has practiced falling out of his chair, and was able to roll even with his head pointer on. But he lost valuable time on a project he was working on.

The crescendo happened on Friday when he was walking home from a meeting- the entire cover of the right wheel had come off, like a semi-truck losing rubber on the tires. His wheelchair would only go in circles, and he called me two blocks from the house, stuck. It would have been funny if it wasn’t 100-degrees outside. He had already called the wheelchair repair guys- an emergency call, partly to make a point that he wasn’t kidding, he needed those parts asap.

I was headed to Durham for a round-table discussion, but was running late due to a morning meeting, but I am so thankful I did not head out of town. I stayed with Barton while we waited for the wheelchair repairman, partly so that our neighbors would know Barton was okay (he had even had a policewoman stop & try to push his wheelchair along)! 

Challenges like this can create havoc on the creative flow- how do you recover from spending half the day outside stuck in 100-degree heat, exhausted, frustrated and angry? Over the weekend, we both worked on our different projects, and it was so wonderful to be able to bounce off of each other, encourage each other to keep going, and it helped sustain the flow.

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